I left home for doctor appointments at 5:45 this morning. I was to have a chest x-ray, PET C/T scan, blood tests, pulmonary tests and a doctor appointment. I began working on getting all this scheduled two months ago because today was my only day off for the next two months, and the doctor requires all these tests around day 100. I can't miss work, so today was crucial.
As has been the case every time with the Bone Marrow Clinic, when I got there, half of the appointments were either not scheduled, or scheduled wrong. I did a lot of complaining to try and get them to fix the problem. They finally got it worked out, but I ended up spending 14 hours away from home for all of it. Not only this, but because of the PET C/T (which they finally did from 3-6pm) , I ended up not eating for over 24 hours.
To compensate me, the clinic gave me a couple of cash cards for The Point Restaurant and a $10 gas card. I'd still prefer it if they would just schedule things right.
To top it all off, my phone battery ran out. I got home, thinking all was well, and when I plugged in my phone, I got a message saying my toe moved (yes, THE toe), and they need 5 more minutes to scan it again!
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