Thought of the Week

  • "Having OCD is like being allergic to life - every waking moment is spent in a state of mental hyper-sensitivity.”

Why am I returning to this blog after so long?

During this next year, this blog will "document" Devin's OCD, and the improvements she makes. In no way is this blog meant to make anyone feel sorry for our trials. We know that trials are merely blessings in wolves' clothing. Because any improvements will be minor and subtle as the days go by, I want to write it all down so that I can look back and see how far Devin has come. If you are a first-time reader, I suggest you begin by reading this post. It will give you some background and show you a starting point. Comments are welcome, but please be kind. This is not an easy illness to deal with. We're all just doing the best we can.

Thursday, December 2, 2010

Blessings and More Blessings

Today we got two pieces of good news.

First of all, Devin's teacher was given permission to let me sit with Devin during her testing. Not only that, but Devin can whisper the answers to me. This is particularly important because, as you know, Devin will not talk to her teachers. (She has anxiety with the teachers). She talks with the kids in front of the teachers, but she will not talk to the teachers. I had asked her teacher at the Parent Teacher Conference if we could do this, and she said she would have to check with her supervisor, and she did, and was given the ok. So far, most of her test scores are 0 because she won't talk to her teachers.

Not only that, but the supervisor is going to bring some sort of tape recorder thing (not entirely sure what this is) that I can take home and have Devin record her voice for the Chart Calling. Then when it's her turn to be the Chart Caller, instead of saying it, she can push the buttons to have her voice play on the recorder while she moves the chart around.

The second piece of good news is that Darin had his doctor appointment today, and it is very encouraging. He has been going to the doctor every 3 months for the last 2 years (well, ok, it's more like the last 4), and now he gets to extend it to every 6 months. That's right, 6 months! Normally this would have been his last PET scan, but there is a new spot on his left knee (not the cancer knee) that lit up, so he has to get one more PET scan. The spot is not in soft tissue, and the doctors are not worried about it. Most likely, they believe, it is the beginnings of arthritis. But, just to be safe, he has one more PET scan in 6 months to see if there are any changes. This is such awesome news. It has been a long road.

With this 2nd year anniversary after his bone marrow transplantation, we hit an important milestone. The likelihood of this cancer coming back after 2 years drops dramatically.

We are truly blessed!

2 comments:

  1. I should also mention that for the past two years, Darin has had a 50% chance of getting cancer again.

    ReplyDelete
  2. So glad to hear the good news!! We are very happy for you.

    ReplyDelete

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